Hearts and Houseshoes

Dealing With Newly Diagnosed T1D

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First, let me just say that T1D stands for type 1 diabetic. I wanted to write this post for those dealing with newly diagnosed t1d. That doesn’t mean it can’t be for anyone else. I just wanted to share a little about my story of being a T1D mom. Hopefully, give you some hope and positive energy. It’s written toward T1D moms because that’s my journey.

Now, for those of you who want a little better understanding of what type 1 diabetes is, you can check out this post Understanding Type 1 Diabetes.

You Are Not Alone

And in case you don’t know yet, I have a daughter and a niece that are both type 1 diabetic. I have been there.

So, let me start off by saying that you are not alone. Now, just calm down and breathe. You got this!

I know what it’s like in the beginning. I’ve been there. It was almost 5 years ago, but I can remember some of it like it was yesterday. My daughter’s diagnose date is 4-4-14. And my niece, who is like another daughter, was diagnosed on 3-14-14. Yea, that’s only 3 weeks apart. Believe me when I say we were going through a lot.

Awareness

The thing is, you don’t hear a lot about this disease. It is becoming more known, as more and more become diagnosed. But, most of us don’t even know the first thing about type 1 until we are in a situation where we have to. That’s very unfortunate. We hear a lot about type 2, but they are VERY different diseases. Don’t get me wrong I’m not trying to say that type 2 is easy or less important. I just don’t feel type 1 has enough awareness.

But anyway, speaking from a mother’s point of view, I know how you feel. There are a million emotions running through your body right now. It’s natural. This is the scariest thing you have dealt with your entire life. It’s the moment you and your baby’s entire life changed.

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It Gets Easier

Now keep in mind that you will learn how to deal with it. And it does get easier. You will eventually be able to get a little rest at night. But, there will also be quite a few sleepless ones, if not already. There is a tremendous amount to learn, and it’s a lot to take in. I just want you to understand that it will get easier as time goes on. I’m not gonna lie, it’s always gonna be a struggle. This is an awful disease, with SO many ups and downs. But, I just want to try and give you a little inspiration in this time of need. I’m sure that you are feeling very vulnerable right now. And you’re probably just looking for a little hope. I sure was.

Be careful, while searching for your answers right now. There are plenty of horror stories out there. And that’s not what you need right now. Try to avoid them if you can. It just makes things worse on you. You definitely need to understand the dangers, but that is not the way to learn about them.

The truth is your whole world has changed in the blink of an eye. You don’t know why your baby has to go through this. I say baby, because in my eyes they are always your babies, no matter what age. My baby was actually 10 years old. My niece was 20. They’re still my babies! Age doesn’t change that.

Here they are just a few months after being diagnosed.

Happy and Healthy

And I am happy to say that they are both leading happy and healthy lives. They are both on a pump. Which is absolutely amazing. No more of those terrible repeated shots every day.

For those of you who don’t know, the only way to get insulin is through an injection. You have to take multiple shots every day. And if you have been there you know, this is the hardest thing I have ever had to do in my life. I will never forget this moment for as long as I live. You spend your entire life trying to protect your child. Then here you are having to shove a needle in their precious little arm in order for them to survive. If you have had to experience this, I am sorry. If not, I can only say that I hope you never do.

I cringe when I hear someone say that their child is a diabetic. I know the struggle that comes with it, and it breaks my heart. But on another note, it’s good to have someone else that’s been in your shoes. Someone that can truly understand the feelings you are having.

Pumps

So anyway back on the pump subject. This is something that pumps insulin into your body throughout the day. You only have to change the site every three days. And that’s an amazing thing when you have to take many shots a day. It took a while for both of my girls to decide and try the pump. I think they were just scared. My niece decided she wanted to have a baby and that was the best way for her to regulate her sugar. A very important thing when you’re pregnant, by the way. So, she gave it a try. She hasn’t looked back since. Then my daughter saw how well my niece liked it, so she finally gave in and got one for herself. Now, neither one would ever want to go without it.

Here is my daughter now with her pump.

Expensive

So, if you’re wondering about one for yourself or your child. I say go for it. It’s one of the best inventions ever. They are VERY expensive though. Hopefully, you have insurance to help pay for one. On that note, everything to do with this disease is expensive. That’s another thing that is so aggravating. You need all this stuff in order to live but can’t afford half of it if you don’t have insurance. That’s a whole other subject though. I can just ramble on forever about this disease. Gotta watch myself and try to stay on track.

On that note, my niece has a happy and healthy little girl. She is actually even pregnant right now with her second child. WooHoo! We are all excited.

And my daughter has also learned to deal with this disease. Of course, she hates the finger pricks. We are actually looking into the Dexcom G6. We have used an older version before that she didn’t like as well. But, they have made a lot of improvements. A G6 is something that will monitor her blood continuously. And soon it will be able to work with her pump. They will work together to act like a normal pancreas. Since there is no cure, this is the next best thing. To be able to use these and have them working together is AMAZING! This shows how far we have come in even five years. Great hope for the future.

Finger Pricks

But for the meantime, she keeps doing the finger pricks. We actually bought her a special lancing device, what she pokes her fingers with. I was having a hard time getting her to check her blood, because it hurts, especially doing it various times every day. If you’re having trouble, you may want to give it a try.

It’s called a Genteel Lancing Device. And you can check it out here if you want. It’s a little expensive as well, and insurance does not usually cover it. But, it is SO worth it. She has no problem checking her blood now.

Support

She’s doing great and is our little diabetic diva. She loves dancing and watching videos. Even though she is really shy, she recently decided to step out of her comfort zone. She wants to start doing her own videos. If you want to help her out, you can follow her on Instagram right here. And if you have or know of any teenagers in her situation let me know. It’s great for them to have support from others their own age. Being a teenager is hard enough without added problems. I think it’s good to be able to communicate with others who can relate to your struggles.

I hope that I have helped you out just a little. There are plenty of things that can help make this journey easier. I will be writing about this subject regularly as well.  So be on the lookout for more posts. Feel free to comment or email me as well. You can even join me on social media. I would love to have others to communicate with that are in the same boat as me.

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8 thoughts on “Dealing With Newly Diagnosed T1D

  1. Hi Kendra,
    I saw this post in the 10k challenge today and had to read it! My son Drew who is now 25 was diagnosed with Type 1 diabetes at age 7. My son lives a full, very active life and has not let T1D slow him down! Although as you know it is a very difficult disease with many ups and downs and challenges. Thank goodness for the pump and continuous glucose monitors. Things have changed for the better since Drew was diagnosed 18 years ago. I hope things continue to improve for our “babies.” 🙂

    1. I know how that is, I always love to read posts I can personally relate to. Sorry about your son, but happy he is doing well. T1D definitely is a daily struggle full of up and down moments. I couldn’t’ imagine raising a T1D child without all of the amazing products we have today. She LOVES her pump and is looking forward to using it with a cgm. I can’t wait to see what new technology they will come out with. But, in the meantime, I am right there with you, hoping their lives continue to improve and praying for a cure!

  2. Hello! Someone in my Facebook group shared this site with us so I came to take a look.
    I’m definitely loving the information. I’m book-marking and will be tweeting this to my followers!

    Outstanding blog and amazing style and design.

    1. Thank you so much. I am glad you found it helpful and enjoyed it. Thanks for spreading the word too. Every little bit helps raise awareness.

  3. I just want to say that I love this, and my heart is bursting with love for you and your family. I’ve had Type 1 Diabetes since age 2, and I was nodding my head to every word I read here. I actually JUST started up my first G6 session with my t:Slim X2. I’m SO excited to see how Basal IQ works, though I’ve been able to manage around my lows (and roller coasters) by eating low-carb. I have so much respect to the parents of children with this disease. Y’all are rockstars. <3

    1. Awww. Thank you. It just brings tears to my eyes to read comments and reply. And I am not a very emotional person. Lol. But, I love hearing stories from others who help give hope. It’s so uplifting. I am really excited about the G6 and t:Slim X2 as well. I pray they work as well together as they are supposed to. She has been wanting to get a G6 herself. We tried previous versions and dindn’t care for them. But, this one sounds amazing. I hope it works out well for you. And thank you so much for your comment and kind words.

  4. Superb post however I was wanting to know if you could write a litte more on this
    subject? I’d be very thankful if you could elaborate a little
    bit more. Thank you!

    1. Thanks. I definitely will be. Was there anything specific you were looking for, or just wanting more info in general?

Your feedback is always welcomed and appreciated.

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